Resources By Age

Planning for Every Stage

From Early Childhood to Adulthood

Early Childhood

0-4

Building Foundations & Early Support

Grade School

5-12

Learning & Skill Building

Teens

13-18

Independence & Future Planning

Transition to Adulthood

18-21

Life After High School

Early Childhood

0-4

Building Foundations & Early Support

Grade School

5-12

Learning & Skill Building

Teens

13-18

Independence & Future Planning

Transition to Adulthood

18-21

Life After Highschool

Early Childhood

What To Think About Right Now

At this stage, families should start thinking about:

Seeking an Official Diagnosis

Connecting with Supports

Seeking an Official Diagnosis

Children’s Mercy

 Children’s Mercy is a leading independent children’s health organization.

816-234-3674

Compass Health Network

Compass Health provides mental health services to rural communities.

844-853-8937

Thompson Center for Autism & Neurodevelopment

The Thompson Center provides diagnostic, assessment, and treatment services.

573-884-6052

 

Connecting With Supports

Missouri First Steps

Provides early intervention systems to support families with children, birth to three years age.

866-583-2392 Ext. 3

 

The Pediatric Place

The Pediatric Place provides therapies and service options to support developmental milestones, independence, and other needs.

660-219-9176

PATs – Centerview

Parents As Teachers (PATs) is an early childhood family education program to to assist and support families in preparing their children for success in school and beyond.

660-656-3009

 

PATs – Holden

Parents As Teachers (PATs) is an early childhood family education program to assist and support families in preparing their children for success in school and beyond.

816-850-4444

 

PATs – Kingsville

Parents As Teachers (PATs) is an early childhood family education program to assist and support families in preparing their children for success in school and beyond.

816-597-3422

PATs – Knob Noster

Parents As Teachers (PATs) is an early childhood family education program to assist and support families in preparing their children for success in school and beyond.

660-563-3028

PATs – Leeton

Parents As Teachers (PATs) is an early childhood family education program to assist and support families in preparing their children for success in school and beyond.

660-653-.2301

 

PATs – Warrensburg

Parents As Teachers (PATs) is an early childhood family education program to assist and support families in preparing their children for success in school and beyond.

660-.747-7424

Grade School

What To Think About Right Now

At this stage, families should start thinking about:

Seeking an Official Diagnosis

Understanding IEPs & 504s

Connecting with Case Management Services

Connecting with Therapies

Seeking an Official Diagnosis

Children’s Mercy

Children’s Mercy is a leading independent children’s health organization.

816-234-3674

Compass Health Network

Compass Health provides mental health services to rural communities.

816-853-8397

Thompson Center for Autism & Neurodevelopment

The Thompson Center provides diagnostic, assessment, and treatment services.

573-884-6052

 

Understanding IEPs & 504s

Missouri Parents Act (IMPACT)

Missouri Parents Act is a non-profit dedicated to helping to empower families to advocate for themselves so that children with special education needs can reach their full potential.

800-743-7634

 

Missouri Department of Special Education

Missouri Department of Special Education helps guide parents with understanding State and Federal regulations.

573-751-5739

Connecting with Case Management Services

Johnson County Board of Services

We provide case management services to individuals with developmental disabilities from birth to end of life. Our Family Navigation program is designed to help individuals and families get connected to services through the Department of Mental Health. We have a Medicaid and Non-Medicaid case management program.

660-240-3343

 

Connecting with Therapies

Autism Support Now

Provides Applied Behavior Analytics (ABA) therapy to children with Autism.

913-373-1657

 

Needham & Foster

Needham & Foster provides speech therapy across Missouri.

660-219-9380

The Pediatric Place

The Pediatric Place provides various therapies and service options to support developmental milestones, independence, and other needs.

660-219-9176

 

The Dyslexia Den

The Dyslexia Den is a speech-language pathology private practice. Their goal is to empower struggling readers and their families through skilled therapy, family partnership, and community advocacy.

660-858-8336

 

Teens

What To Think About Right Now

At this stage, families should start thinking about:

Independent Living Skills

Post Secondary Options

Transitioning to Adulthood

Independent Living Skills

During this stage it is important to start working on skills to live and work independently. Examples are cooking, cleaning, money management, and daily living skills. While working on these skills, it is important to figure out where support is needed as your loved one continues to grow.

Missouri Pre-Employment Transition Services

Pre- Employment Transition Services (Pre-ETS) offers no-cost pre-employment transition services to Missouri high school students with disabilities ages 14-21.

Usually referred by the school district.

844-901-7387

 

Post Secondary Options

This is a key time for transition planning. IEP goals should focus on employment skills, daily living, and educational plans. Students may explore supported employment, volunteer work, or college options.

College Programs

Throughout Missouri there are several college who have programs for individuals with developmental disabilities. It is important to note that students who attend these programs are not eligible for Financial Aid. Many schools offer grant options to help support the cost of attendance. The University of Central Missouri is home to one of these programs, called Thrive. 

Employment Opportunities

It’s important during this time to think about what your loved one wants to do as they get older. Some students may not want to continue their education and opt to enter the workforce.

Transitioning to Adulthood

MO Health Net (Missouri Medicaid)

Many independent living or employment programs are funded through Medicaid. Some students may not qualify for Medicaid until they turn 18 and are no longer claimed as a dependent on their guardian’s taxes. It is important to start thinking if these types of programs are something your loved one may need in the future. 

These programs are accessed through Targeted Case Management Services through the Johnson County Board of Services. If you are interested in learning more about these services please contact us.

Johnson County Board of Services

We provide case management services to individuals with developmental disabilities from birth to end of life. Our Family Navigation program is designed to help individuals and families get connected to services through the Department of Mental Health. We have a Medicaid and Non-Medicaid case management program.

660-240-3343

 

Vocational Rehabilitation

Vocational Rehabilitation can provide assistance for post secondary goals such as continuing education or employment assistance.

Referral Link

660-530-5560 

 

Guardianship vs. Supported Decision Making

During this stage it is important to start evaluating of your loved one will need a guardian when they turn 18, or more supported decision making assistance such as Power of Attorney, Representative Payee, Joint Bank Accounts, Healthcare Power of Attorney, Trusts, and Conservatorship. We recommend speaking to a lawyer to better understand your options.

** Disclaimer: We do not provide legal advice. The information we share is general and meant for educational purposes only.

Special Needs Trust

These types of trusts are a legal arrangement allowing individuals with disabilities to hold assets and maintain eligibility for government benefits like Medicaid and Social Security. These can be created by meeting with a lawyer.

Midwest Special Needs Trust

This purpose of this organization is to help administer special needs trusts. This organization does have lawyers on staff who assist with this process.

573-256-5055 

 

MO ABLE Account

MO ABLE is Missouri’s ABLE program. Missourians with disabilities and their families can save up to $18,000 per year (more if you have a job) without risking the loss of benefits including Medicaid and SSI. Contributors to MO ABLE accounts receive a Missouri income tax deduction.

800-439-1653 

 

Transition to Adulthood

What To Think About Right Now

At this stage, families should start thinking about:

Benefits & Services

Future Planning

Benefits & Services

As students reach their final year of high school-whether it’s their senior year or by the age of 21-it’s critical to establish an official graduation or exit date. This date determines when adult services can begin. Services like Day Programs through the Department of Mental Health cannot be accessed until a student has officially exited school.

MO Health Net (Missouri Medicaid)

Many independent living or employment programs are funded through Medicaid. Some students may not qualify for Medicaid until they turn 18 and are no longer claimed as a dependent on their guardian’s taxes. It is important to start thinking if these types of programs are something your loved one may need in the future. These programs are accessed through Targeted Case Management Services through the Johnson County Board of Services. If you are interested in learning more about these services please contact us.

Supplemental Security Income (SSI)

Supplemental Security Income (SSI) is a federal program that provides monthly income to people who cannot work because of a long-term medical condition or disability. This is a difficult program to apply for and can be difficult to get approved for. Not everyone with a disability qualifies.

800-772-1213

 

MO ABLE Account

MO ABLE is Missouri’s ABLE program. Missourians with disabilities and their families can save up to $18,000 per year (more if you have a job) without risking the loss of benefits including Medicaid and SSI. Contributors to MO ABLE accounts receive a Missouri income tax deduction.

800-439-1653

 

Johnson County Board of Services

We provide case management services to individuals with developmental disabilities from birth to end of life. Our Family Navigation program is designed to help individuals and families get connected to services through the Department of Mental Health. We have a Medicaid and Non-Medicaid case management program.

660-240-3343

Vocational Rehabilitation

Vocational Rehabilitation can provide assistance for post secondary goals such as continuing education or employment assistance.

Referral Link

660-530-5560

 

Vocational Centers – Sheltered Workshops

 

Sheltered Workshops provide employment in a controlled, safe, and highly supervised work environment. These programs enable individuals with disabilities to develop job skills. Sheltered Workshops are not a fit for everyone, there are other employment services available depending on the person’s skills and needs.

Future Planning

It is important to start planning for your loved one’s future when it comes to caregiving, guardianship, conservatorship etc. We recommend speaking to a legal representative when you are planning to make sure all your affairs are in order. We also recommend ensuring that services are in place so that your loved one can continue to live their good life.

Guardianship vs. Supported Decision Making

During this stage it is important to start evaluating of your loved one will need a guardian when they turn 18, or more supported decision making assistance such as Power of Attorney, Representative Payee, Joint Bank Accounts, Healthcare Power of Attorney, Trusts, and Conservatorship. We recommend speaking to a lawyer to better understand your options. It is also important to think about who will take over guardianship or support decision making when you are no longer able to care for them.

** Disclaimer: We do not provide legal advice. The information we share is general and meant for educational purposes only.

Special Needs Trust

These types of trusts are a legal arrangement allowing individuals with disabilities to hold assets and maintain eligibility for government benefits like Medicaid and Social Security. These can be created by meeting with a lawyer.

Midwest Special Needs Trust

This purpose of this organization is to help administer special needs trusts. This organization does have lawyers on staff who assist with this process.

573-256-5055

 

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